The Begining!!

The Begining!!!!!

We found out on September 25, 2009 that we were going to have a baby born with a Congenital Diaphragmatic Hernia. We were very scared and nervous and wasn't quiet sure what to expect. We were told that the baby would have to be born at UVA Medical Center in Charlottesville, VA. On October 1st we had an appointment at UVA for a ultrasound. We were very scared and not sure what the doctors would tell us. The doctors informed us that the baby was going to be born with a hole in his diaphragm. The hole would allow his stomach and intestines to come up threw the hole and push on the baby's lungs. The baby's lungs would not be able to develop as well a a normal baby's would. The baby would have to have a tube down its throat to help the baby breathe. They would do surgery on the baby 3 to 10 days after it is born to fix the hole and put everything back were its suppose to be. The doctors gave us all the facts and told us that there is no guarantee. We knew that it was going to be a very long and rough road ahead but we were going to stay positive and have faith. We received a lot of information that scared us and made us very nervous but we also were informed that we were going to have a baby BOY! We are going to have a son and he is going to be an amazing young man! We chose to name him Nathaniel because it meant "Given by God" and we knew that he is our gift and we were blessed. We have had many doctors appointments since then and many ultrasounds and he is growing and doing as well as can be expected. They are going to induce me on February 4. Nate will have to remain in the NICU until he will be able to breathe on his own. We have faith that God will take good care of him and he is going to be okay. Nate is making his mark early in life so God must have a special purpose in mind for him.















Sunday, April 18, 2010

Home at last!!!

We are all home and it feels great! We are starting to settled in and Nate is doing good. I will try and post hopefully once a month probably on the 4th. We go back to UVA on April 30th to see the surgeons. Please keep praying for our little man!!!!
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Wednesday, April 14, 2010

Nate the Great is going home!!!!!

Nate the Great is doing very well. He is eating everything by mouth and he doesn't need oxygen all the time. He is a miracle baby. Nate has spent 10 weeks in the hospital and tomorrow we get to take our strong boy home. I can't believe the time as finally come. I have came to the hospital for 70 days in a row and every day I just wanted to grab Nate and run out the door and tomorrow we get to do that. We are so grateful to EVERYONE who has been there for us and helped us through this tough time even if you made yourselves anonymous we just want to say thank you. We appreciate it and hope that you are all blessed because you all blessed us. Nate is a amazing little boy and he has been through more that most people experience in a life time. He has had 10 surgeries, been on Ecmo, and he is still going strong. We are so proud of Nate every time I look at him I am amazed that even with everything he has been through he will still look at me with those big eyes and grin at me and my heart melts. Please keep praying for him because he will still face some difficult times. We finally get to be a family.
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Sunday, April 4, 2010

Nate 2 months old!

Nate giving us a little grin!
Me and my babies together at last!

Riley loves her little brother!
I am so sorry that I have not update lately its been very busy with the move. Nate is doing very well. They moved him to Kluge so he can have more therapy and work on feeding. He is now taking a bottle and getting about 50% of his feed that way and the rest is through his NGT. We are working very hard on feeding. He weighs 10 lbs 6 oz. He is now on low flow nasal canulas at 500 ml. Nate has come a very long way he is amazing every day he does something new. He grins all the time. They are weaning his pain meds still, they are almost there. Nate is so strong he has physical therapy every day to try and loosen up his neck muscles, they are very tight from when he was on ECMO. They did a MRI on his brain and everything looked normal. Riley finally got to meet her little brother and she adores him. It was so nice to have both my babies together in the same room. Nate has to get up to full feeds by bottle or by breast and then hopefully we will be going home most likely he will be on oxygen. I am so ready to go home. Please keep him in your prayers because they have definitely been heard. Nate is the most amazing baby boy and we are so proud.


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Nate has moved to Kluge's Childrens Rehabilation Center!!!

Nate getting ready to be transferred.




Nate's first time outside. He sneezed when he saw the sun.
Nate being unloaded he loved the trip.



We arrived safely at Kluge!
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