The Begining!!

The Begining!!!!!

We found out on September 25, 2009 that we were going to have a baby born with a Congenital Diaphragmatic Hernia. We were very scared and nervous and wasn't quiet sure what to expect. We were told that the baby would have to be born at UVA Medical Center in Charlottesville, VA. On October 1st we had an appointment at UVA for a ultrasound. We were very scared and not sure what the doctors would tell us. The doctors informed us that the baby was going to be born with a hole in his diaphragm. The hole would allow his stomach and intestines to come up threw the hole and push on the baby's lungs. The baby's lungs would not be able to develop as well a a normal baby's would. The baby would have to have a tube down its throat to help the baby breathe. They would do surgery on the baby 3 to 10 days after it is born to fix the hole and put everything back were its suppose to be. The doctors gave us all the facts and told us that there is no guarantee. We knew that it was going to be a very long and rough road ahead but we were going to stay positive and have faith. We received a lot of information that scared us and made us very nervous but we also were informed that we were going to have a baby BOY! We are going to have a son and he is going to be an amazing young man! We chose to name him Nathaniel because it meant "Given by God" and we knew that he is our gift and we were blessed. We have had many doctors appointments since then and many ultrasounds and he is growing and doing as well as can be expected. They are going to induce me on February 4. Nate will have to remain in the NICU until he will be able to breathe on his own. We have faith that God will take good care of him and he is going to be okay. Nate is making his mark early in life so God must have a special purpose in mind for him.















Sunday, April 4, 2010

Nate 2 months old!

Nate giving us a little grin!
Me and my babies together at last!

Riley loves her little brother!
I am so sorry that I have not update lately its been very busy with the move. Nate is doing very well. They moved him to Kluge so he can have more therapy and work on feeding. He is now taking a bottle and getting about 50% of his feed that way and the rest is through his NGT. We are working very hard on feeding. He weighs 10 lbs 6 oz. He is now on low flow nasal canulas at 500 ml. Nate has come a very long way he is amazing every day he does something new. He grins all the time. They are weaning his pain meds still, they are almost there. Nate is so strong he has physical therapy every day to try and loosen up his neck muscles, they are very tight from when he was on ECMO. They did a MRI on his brain and everything looked normal. Riley finally got to meet her little brother and she adores him. It was so nice to have both my babies together in the same room. Nate has to get up to full feeds by bottle or by breast and then hopefully we will be going home most likely he will be on oxygen. I am so ready to go home. Please keep him in your prayers because they have definitely been heard. Nate is the most amazing baby boy and we are so proud.


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2 comments:

  1. *April 4, 2010 at 11:18 PM

    Kristen you are welcome to come visit any time you don't have to call!

    ReplyDelete
  2. UnknownApril 6, 2010 at 11:21 PM

    Oh, such wonderful news! We are thrilled for you all!
    Love you bunches,
    Killens

    ReplyDelete

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