The Begining!!
The Begining!!!!!
We found out on September 25, 2009 that we were going to have a baby born with a Congenital Diaphragmatic Hernia. We were very scared and nervous and wasn't quiet sure what to expect. We were told that the baby would have to be born at UVA Medical Center in Charlottesville, VA. On October 1st we had an appointment at UVA for a ultrasound. We were very scared and not sure what the doctors would tell us. The doctors informed us that the baby was going to be born with a hole in his diaphragm. The hole would allow his stomach and intestines to come up threw the hole and push on the baby's lungs. The baby's lungs would not be able to develop as well a a normal baby's would. The baby would have to have a tube down its throat to help the baby breathe. They would do surgery on the baby 3 to 10 days after it is born to fix the hole and put everything back were its suppose to be. The doctors gave us all the facts and told us that there is no guarantee. We knew that it was going to be a very long and rough road ahead but we were going to stay positive and have faith. We received a lot of information that scared us and made us very nervous but we also were informed that we were going to have a baby BOY! We are going to have a son and he is going to be an amazing young man! We chose to name him Nathaniel because it meant "Given by God" and we knew that he is our gift and we were blessed. We have had many doctors appointments since then and many ultrasounds and he is growing and doing as well as can be expected. They are going to induce me on February 4. Nate will have to remain in the NICU until he will be able to breathe on his own. We have faith that God will take good care of him and he is going to be okay. Nate is making his mark early in life so God must have a special purpose in mind for him.
Today Nate was taken off the Ecmo machine! The machine saved Nate's life but it had a lot of risk so we were glad to see it go. We are very thankful for the Ecmo technicians who watched the machine and Nate 24/7. Nate is doing good he is still very critical but he is moving forward. He has a very long and difficult road ahead but he is a fighter and God is on his side. The goal is for him to have surgery on Thursday morning but you know doctors they change their minds a lot so it may be sooner it all depends on Nate and how stable he is. The surgery can take 2 to 3 hours. Please keep Nate in your prayers as he is getting use to breathing on his own and that he can maintain his oxygen level. We are very proud of Nate; he is a very strong little boy.
Thank you Jesus!!! Nate you are beautiful!!Praying - Love you, Killens
ReplyDeleteLindsey:
ReplyDeleteKalley was much sicker than Nate when she had the surgery and the surgery went very well. Matter of fact, she was still on ECMO when she had the surgery. You are right, you still have a long, difficult road ahead of you, but it sounds like that things are going really good. There will still be ups and downs --- and we are ALL praying that there are more "ups". :) I know that it is difficult, but please take good care of yourself!!!! Keeping your family in our prayers!
Love, Kristen Bray
beautiful baby Nate...so proud of your fight! keep fightin lil man! =) we will keep praying. <3 -The Meltons & The Jenkins
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